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Nappies and Chemo: A baby battles cancer

Daya

Pamela has lived in the Palmers Green area since 2007. With her husband of ten years, she has three wonderful children: one five year old and twins aged 20 months. The twins were born in autumn 2016, and are named Jasmine and Daya. Jasmine was born deaf and disabled, and requires additional care. Pamela said, “As parents, we are determined to give Jasmine all that she needs to flourish, including the practice of Sign Language.”

Things took a turn for the worse in late August 2017, when Jasmine’s twin, Daya, was diagnosed with a rare and aggressive cancer named neuroblastoma. Daya had a huge mass in her abdomen and the cancer had quickly spread to her lymphatic system and bones. Generally, survival rates for neuroblastoma are around the 50% mark. Pamela said, “seeing your kid with cancer and the suffering of chemo is amongst a parent’s worst nightmares”.

Since diagnosis, Daya has been under the expert care of the cancer department at Great Ormond Street Hospital, and has completed eight rounds of chemotherapy. In between each round of chemo, Daya would need intravenous antibiotics at North Middlesex Hospital. Daya’s parents said, “The NHS has been fantastic from the point of diagnosis. Whether at GOSH or our local North Midd, the doctors and nurses have been real heroes for us.”

Daya is currently undergoing high dose chemotherapy at Great Ormond Street as an in-patient for six weeks. Given the risk of infection after chemotherapy, which works by poisoning the body with toxins and lowering the immune system, Daya, who is still only a toddler of 20 months, must be kept in isolation in one room for that entire period of six weeks.

Neuroblastoma is relatively rare amongst the childhood cancers. Options to treat it can become limited and families may face accessing treatment overseas which is not available on the NHS. So, Daya’s parents have started raising funds for the charity Solving Kids’ Cancer, which lobbies for better clinical options within the UK, and supports families if they decide to access potentially life-saving specialist treatments overseas.

Thanks to their wonderful friends and family, Daya’s parents are organising a number of fundraising events, including several in the Palmers Green area. We are raising funds for SKC, and they are directly supporting us in the hope of accessing essential treatments overseas.

Funds not used for Daya will be used by SKC to help other children in similar danger .

The JustGiving link is:  this:

tinyurl.com/y92ggod3

For details of those events and to follow their story, please see the JustGiving site and Pamela’s blog at mythreelittlebears.wordpress.com.

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